Lama2 Germany

Lama2 Germany is a group of families from all over Germany, with children, adolescents and young adults
who have congenital muscular dystrophy type 1A (MDC1A, also known as LAMA2). Currently, 10 affected families in Germany are networked with each other – mostly through their own initiative, muscle centres or the international platform Lama2.com.

The goals of Lama2 Germany are to connect affected people (families), interested parties and supporters. To provide help from affected people for affected people. To establish a network in Germany. To publicise the diagnosis and network with relevant institutions. To jointly promote research into therapeutic approaches and provide financial support and experience.