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Joint statement on Modalis
Joint Statement on Modalis Therapeutics’ MDL-101 Programfor LAMA2-Related DystrophyCure CMD, Voor Sara, Modalis Therapeutics June 2026 In light of…
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Personal stories
Blog | Justin Moy visits Modalis: ‘The fact that there is commercial interest in a treatment is astounding’
During the international LAMA2 Conference in Istanbul, fellow patient Justin Moy met Simon Moore from the biotech company Modalis. Justin…
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Join the global LAMA2 community: introducing the international forum!
We are excited to launch the International LAMA2 Forum: a global platform designed to connect people living with LAMA2, their…
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LAMA2-RD support brochure launched for families facing a diagnosis
The Voor Sara Foundation has released a specially designed brochure to support families who have just received a LAMA2-RD diagnosis…
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Pre-conference lectures for patients and families: difficult terms explained
As the internationale conference on Lama2 in Instanbul, Türkiye is approaching and we are very much looking forward to seeing…
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Join the international conference online!
During the International LAMA2 Conference in Istanbul, a live stream with live translation of the presentations will be available on…
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