News
Join the global LAMA2 community: introducing the international forum!
We are excited to launch the International LAMA2 Forum: a global platform designed to connect people living with LAMA2, their…
News
-
![]()
News
-
![]()
News
LAMA2-RD support brochure launched for families facing a diagnosis
The Voor Sara Foundation has released a specially designed brochure to support families who have just received a LAMA2-RD diagnosis…
-
![]()
News
Pre-conference lectures for patients and families: difficult terms explained
As the internationale conference on Lama2 in Instanbul, Türkiye is approaching and we are very much looking forward to seeing…
-
![]()
News
Join the international conference online!
During the International LAMA2 Conference in Istanbul, a live stream with live translation of the presentations will be available on…
-
![]()
News
Submit your attendance to the Lama2 conference in Istanbul
After successful conferences in Maastricht (2019) and Barcelona (2023), we are pleased to announce the third LAMA2-RD-focused conference, to be held…
-
![]()
News
Extension of natural history study: an important step toward better care and clinical trials
The Prinses Beatrix Spierfonds, Stichting Voor Sara, CureCMD and Giving Strength are continuing their collaboration with Radboudumc by extending and…
The driving forces behind Lama2.com
Bekijk alle partners
