Join the global LAMA2 community: introducing the international forum!
We are excited to launch the International LAMA2 Forum: a global platform designed to connect people living with LAMA2, their families, caregivers, researchers, and healthcare professionals from around the world.
Because LAMA2 is a rare condition, our community is spread across many countries. Valuable knowledge, experiences, and research updates are often scattered, making it difficult for families to find support and for researchers to stay connected with patient perspectives. The international Lama2 forum changes that.
The forum provides one central, accessible place where the global LAMA2 community can come together to share knowledge, exchange experiences, and stay informed about ongoing research.
What can you expect?
- A safe and supportive environment for patients and families
- Special topics and categories for children, families and researchers
- Access to updates on current LAMA2 research and developments
- Direct interaction between patients, families, and researchers
- Opportunities for international collaboration and knowledge sharing
The project is initiated and coordinated by the Dutch Stichting Voor Sara, in collaboration with professional web developers and experts from the LAMA2 field.
Why does this matter?
International collaboration is essential for progress in rare diseases. By bringing our community together, we can strengthen research, increase patient involvement, improve understanding of patient needs, and ensure that valuable knowledge is shared rather than lost.
Our goal is simple: build a stronger global LAMA2 network that drives greater visibility, stronger collaboration, and faster progress toward better treatments and outcomes.
Be part of the conversation
Whether you are a patient, parent, family member, caregiver, researcher, or healthcare professional, your voice matters. Join the International LAMA2 Forum today and help shape the future of the global LAMA2 community.
Please note: Access to the International LAMA2 Forum is by invitation only. We are choosing this because we want the forum to be a safe and private environment for all users. If you have not yet received an invitation and would like to join the forum, please complete the form below. We will review your request and send you an invitation as soon as possible.
