
The Extraordinary Story of Justin Moy
Meet Justin: an exceptional young man who, despite living with the LAMA2-CMD, has been living his life to the fullest…
We are several families from all over Europe with one goal: a healthier future for our children living with LAMA2-CMD. Thanks to our patient organizations, we support research into this rare muscle disease. We strive to connect with other families, researchers and clinicians from the LAMA2 community.
This website brings together the community and centralises all information, education, community news and research and industry updates. Together we are stronger!
Our mission is to further advance awareness and research for LAMA2-CMD internationally and to directly support patients and families by providing relevant information and resources.
This website brings together the international LAMA2-CMD community and centralises all information, education, community news and research and industry updates directly relating to the fight against LAMA2-CMD.
By including the patients and families, and by collaborating with the clinicians, researchers and members of the biotech industry involved with LAMA2-CMD around the world, we aim to accelerate the road to therapy in a truly united and collective global effort.
Find more on our objectives and who we are here.
Who: Dr. Francina Munell and Dr. Jordi Barquinero
Where: Barcelona, Spain
Research: Diagnostics and stem cell therapy for LAMA2-CMD patients
Meet Justin: an exceptional young man who, despite living with the LAMA2-CMD, has been living his life to the fullest…
The collaboration between the three European patient organizations (Voor Sara, ImpulsaT and Lama2 France) has been formalized and has led…
After being diagnosed with LAMA2-CMD at 39 years old, Cindy experienced 3 seizures, the last being generalised. This prompted brain…
Dr. Dwi Kemaladewi is playing a a key role in developing a novel therapeutic approach that has opened new treatment…
Do you have a question for one of the experts or researchers with whom we are in contact? About an investigation, a treatment method or other information that you are looking for? Submit your question and we will get you a personal answer as soon as possible. We will also publish the answer on this website.