
International conference: Paving the road to therapy
Hello everyone, From 17 till 19 march there will be an international conference about Lama2-MD in Barcelona. The conference LAMA2…
Our mission is to further advance awareness and research for LAMA2-CMD internationally and to directly support patients and families by providing relevant information and resources.
This website brings together the international LAMA2-CMD community and centralises all information, education, community news and research and industry updates directly relating to the fight against LAMA2-CMD.
By including the patients and families, and by collaborating with the clinicians, researchers and members of the biotech industry involved with LAMA2-CMD around the world, we aim to accelerate the road to therapy in a truly united and collective global effort.
Find more on our objectives and who we are here.
Who: Dr. Francina Munell and Dr. Jordi Barquinero
Where: Barcelona, Spain
Research: Diagnostics and stem cell therapy for LAMA2-CMD patients
Hello everyone, From 17 till 19 march there will be an international conference about Lama2-MD in Barcelona. The conference LAMA2…
This month, Maastricht UMC, led by Professor Bert Smeets, started a first clinical study in which healthy stem cells from…
Muscles On Wheels: a children’s book about a girl in a wheelchair! This special story is written by three students…
Meet Justin: an exceptional young man who, despite living with the LAMA2-CMD, has been living his life to the fullest…
Do you have a question for one of the experts or researchers with whom we are in contact? About an investigation, a treatment method or other information that you are looking for? Submit your question and we will get you a personal answer as soon as possible. We will also publish the answer on this website.