Together we are stronger!

We, as families spanning across Europe, share a common objective: to forge a healthier future for our children living with LAMA2-CMD.

Through our dedicated patient organizations, we actively contribute to the advancement of research in this rare muscle disease. Our collective effort is directed towards fostering connections among families, researchers, and clinicians within the LAMA2 community internationally.

This website serves as a unifying platform to centralise comprehesive information, community news, scientific and clinical updates and raise awarness for LAMA2-CMD. In unity, we find strength!
The Website

Our Mission

Our mission is to further advance awareness and research for LAMA2-CMD internationally and to directly support patients and families by providing relevant information and resources.

This website brings together the international LAMA2-CMD community and centralises all information, education, community news and research and industry updates directly relating to the fight against LAMA2-CMD.

By including the patients and families, and by collaborating with the clinicians, researchers and members of the biotech industry involved with LAMA2-CMD around the world, we aim to accelerate the road to therapy in a truly united and collective global effort.

Find more on our objectives and who we are here.

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What is LAMA2-CMD?

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Do you have a question for one of the experts or researchers with whom we are in contact? About an investigation, a treatment method or other information that you are looking for? Submit your question and we will get you a personal answer as soon as possible. We will also publish the answer on this website. 

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