When is surgery necessary?

Surgery may be considered for severe scoliosis (spinal curvature), significant contractures (joint stiffening), or to place a gastrostomy (a feeding tube inserted through the abdomen wall into the stomach) when eating safely by mouth has become difficult. Decisions about surgery are always made individually with the full care team.

Is there a cure for LAMA2-RD? What treatments are currently available? Which therapies can improve quality of life? What role does occupational therapy play? What role do speech and language therapy play? What role does hydrotherapy play? What assistive devices are available? When is a wheelchair needed? What types of respiratory support are available? When is night-time ventilation recommended? How are scoliosis and joint contractures managed? What feeding and nutritional problems can occur? When is a feeding tube recommended? Which vaccinations are recommended? How often should patients be monitored? Which medical assessments are important?

When is surgery necessary?

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