News

The collaboration between the three European patient organizations (Voor Sara, ImpulsaT and Lama2 France) has been formalized and has led…

This week has seen the roll out of the new and updated version of the MDC1A.com website! Continuing our efforts…

The Generate Your Muscle (GYM) project was recently set up with the aim of developing and commercialising affordable stem cell…

The Congenital Muscle Disease International Registry (CMDIR) aims to advance neuromuscular research by collecting vital data and by growing advocacy…