Help Shape the Future of LAMA2-Related Dystrophy Care Guidelines
In January 2025, clinicians specialising in LAMA2-Congenital Muscular Dystrophy (LAMA2-CMD) will convene in The Netherlands to begin developing updated care guidelines. This initiative is a crucial step towards improving care for individuals living with LAMA2-CMD — and we need your input to make it a success!
Your Voice Matters!
Workshop organisers have created a survey to gather insights from individuals affected by LAMA2-CMD, carers, and clinicians. Your feedback is essential to ensuring that the workshop discussions and the resulting care guidelines reflect the real needs of the LAMA2-CMD community.
Participate in the Survey
Learn more about this project and complete the survey by visiting this link or by scanning the QR below.
The survey is available in multiple languages; simply select your preferred language from the dropdown menu at the top of the page. Please share your responses by 31 December 2024.
Have Questions or Additional Input?
If you have any questions or suggestions and insights, please feel free to contact:
- Rachel Alvarez at Cure CMD: [email protected]
- Bram Verbrugge at Voor Sara: [email protected]
Thank You for Your Contribution
Your time and input are invaluable to this important project. Together, we can improve care for individuals living with LAMA2-CMD.
Scan the QR code to complete the survey!
