What LAMA2-CMD patient associations are there?

Several associations representing LAMA2-CMD patients exist worldwide. You can find many of these listed on the world map found on our homepage. If you cannot find an existing association in your respective country, we invite you to contact us here to see if we can help you connect with your local LAMA2-CMD network.

Where can I read about patient stories and experiences? Are clinical trials and investigations being carried out? What stages are they in and how can I stay up to date? Are there any medicines or therapies to cure or alleviate the disease? How can I meet patients in my country? How rare is LAMA2-CMD? What’s the difference between the several names used for the same muscle disease? I didn’t find my question here. Where can I ask my question? What is LAMA2-CMD?

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