How rare is LAMA2-CMD?

LAMA2-CMD is a rare congenital neuromuscular disease that affects 1 to 4 people in every 100,000.

Where can I read about patient stories and experiences? Are clinical trials and investigations being carried out? What stages are they in and how can I stay up to date? Are there any medicines or therapies to cure or alleviate the disease? How can I meet patients in my country? What LAMA2-CMD patient associations are there? What’s the difference between the several names used for the same muscle disease? I didn’t find my question here. Where can I ask my question? What is LAMA2-CMD?

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