Where can I read about patient stories and experiences?

Different LAMA2-CMD patient organisations often share patient stories on their respective websites and social media platforms. We invite you to visit the world map on our homepage where you will find a number of LAMA2-CMD associations around the world. Additionally, you can find patient stories from around the world collated on this website’s community page.

Are clinical trials and investigations being carried out? What stages are they in and how can I stay up to date? Are there any medicines or therapies to cure or alleviate the disease? How can I meet patients in my country? What LAMA2-CMD patient associations are there? How rare is LAMA2-CMD? What’s the difference between the several names used for the same muscle disease? I didn’t find my question here. Where can I ask my question? What is LAMA2-CMD?

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