Are there any medicines or therapies to cure or alleviate the disease?

There is currently no available cure for LAMA2-CMD but there are existing treatments and therapies to help alleviate the symptoms. Physiotherapy can help prevent muscle contractures, and a specific exercise programme should be led by a physiotherapist as early as possible. Often, surgery may be required to help release the contractures.

Where can I read about patient stories and experiences? Are clinical trials and investigations being carried out? What stages are they in and how can I stay up to date? How can I meet patients in my country? What LAMA2-CMD patient associations are there? How rare is LAMA2-CMD? What’s the difference between the several names used for the same muscle disease? I didn’t find my question here. Where can I ask my question? What is LAMA2-CMD?

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