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How can I be of any help?

We already have good contacts with many enthusiastic people, but probably don’t know everyone yet. If we have missed a patient organisation, an investigation or something else important or notable, please let us know!

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Do you have a question for one of the experts or researchers with whom we are in contact? About an investigation, a treatment method or other information that you are looking for? Submit your question and we will get you a personal answer as soon as possible. We will also publish the answer on this website.

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