How can I be of any help?
We already have good contacts with many enthusiastic people, but probably don’t know everyone yet. If we have missed a patient organisation, an investigation or something else important or notable, please let us know!
We already have good contacts with many enthusiastic people, but probably don’t know everyone yet. If we have missed a patient organisation, an investigation or something else important or notable, please let us know!
Do you have a question for one of the experts or researchers with whom we are in contact? About an investigation, a treatment method or other information that you are looking for? Submit your question and we will get you a personal answer as soon as possible. We will also publish the answer on this website.