How can I meet patients in my country?

The best way to meet patients in your country is to contact a local or regional LAMA2-CMD patient associations directly. Several associations representing LAMA2-CMD patients exist worldwide. You can find many of these listed on the world map found on our homepage. If you cannot find an existing association in your respective country, we invite you to contact us here to see if we can help you by connecting you with your local LAMA2-CMD network.

Where can I read about patient stories and experiences? Are clinical trials and investigations being carried out? What stages are they in and how can I stay up to date? Are there any medicines or therapies to cure or alleviate the disease? What LAMA2-CMD patient associations are there? How rare is LAMA2-CMD? What’s the difference between the several names used for the same muscle disease? I didn’t find my question here. Where can I ask my question? What is LAMA2-CMD?

How can I meet patients in my country?

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