What adult healthcare specialists should be involved?

Adult care typically involves a neurologist or neuromuscular specialist, pulmonologist (breathing), cardiologist (heart), rehabilitation medicine specialist, physiotherapist, occupational therapist, dietitian and primary care physician. Psychological support and social work input may also be important.

What happens when a child with LAMA2-RD becomes an adult? How can families prepare for the transition to adult care? What support is available for independent living? How can young adults pursue higher education? What employment opportunities are available? How can adults with LAMA2-RD maintain health and independence?

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