What is LAMA2-CMD?

LAMA2-CMD is a rare congenital neuromuscular disease which causes weakness and wasting of the muscles used for movement. It is the most common form of the congenital muscular dystrophies. More details on the cause of the disease and symptoms can be found here.

Where can I read about patient stories and experiences? Are clinical trials and investigations being carried out? What stages are they in and how can I stay up to date? Are there any medicines or therapies to cure or alleviate the disease? How can I meet patients in my country? What LAMA2-CMD patient associations are there? How rare is LAMA2-CMD? What’s the difference between the several names used for the same muscle disease? I didn’t find my question here. Where can I ask my question?

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