What’s the difference between the several names used for the same muscle disease?

LAMA2-CMD, MDC1A and Limb Girdle Dystrophy are all names for the one and same disease. Here you will find further details on the origins of the different names and why they exist.

Where can I read about patient stories and experiences? Are clinical trials and investigations being carried out? What stages are they in and how can I stay up to date? Are there any medicines or therapies to cure or alleviate the disease? How can I meet patients in my country? What LAMA2-CMD patient associations are there? How rare is LAMA2-CMD? I didn’t find my question here. Where can I ask my question? What is LAMA2-CMD?

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