What support is available for siblings?

Siblings often benefit from honest, age-appropriate explanations of the diagnosis, their own space to ask questions and express feelings, family counselling, and, where possible, contact with other siblings in similar situations. Some patient organizations offer sibling-specific resources. If you are not sure where to start, contact us and we can help direct you.

Can my child attend a mainstream school? What educational support is available? How can I help my child become more independent? Which sports and physical activities are suitable? Is swimming beneficial? Can people with LAMA2-RD travel safely? What travel preparations are important? How can fatigue be managed? What home adaptations may be helpful? Can someone with LAMA2-RD live independently? Can someone with LAMA2-RD work? What social support services are available? How can patients and families cope emotionally?

What support is available for siblings?

Related questions

The driving forces behind Lama2.com