What social support services are available?

This varies by country and may include disability benefits, carer’s allowances, personal care assistance, mobility support, equipment funding and home adaptation grants. If you are not sure where to start, contact us and we can help direct you.

Can my child attend a mainstream school? What educational support is available? How can I help my child become more independent? Which sports and physical activities are suitable? Is swimming beneficial? Can people with LAMA2-RD travel safely? What travel preparations are important? How can fatigue be managed? What home adaptations may be helpful? Can someone with LAMA2-RD live independently? Can someone with LAMA2-RD work? How can patients and families cope emotionally? What support is available for siblings?

What social support services are available?

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