Can someone with LAMA2-RD live independently?

Some people with LAMA2-RD, particularly those with the milder form, can live independently or semi-independently with the right home adaptations, assistive technology and personal care support. Planning ahead and accessing the right services are key. If you are not sure where to start, contact us and we can help direct you.

Can my child attend a mainstream school? What educational support is available? How can I help my child become more independent? Which sports and physical activities are suitable? Is swimming beneficial? Can people with LAMA2-RD travel safely? What travel preparations are important? How can fatigue be managed? What home adaptations may be helpful? Can someone with LAMA2-RD work? What social support services are available? How can patients and families cope emotionally? What support is available for siblings?

Can someone with LAMA2-RD live independently?

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