Where can I find clinical care guidelines?

Clinical care guidelines for LAMA2-RD are being developed internationally, with CureCMD and Stichting Voor Sara among other relevant leading organizations. In the meantime, consult current LAMA2-RD care recommendations, neuromuscular society guidelines and expert centre protocols. An updated list of resources is available on this website. If you are not sure where to start, contact us and we can help direct you.

Which assessments are recommended? What multidisciplinary care is required? How often should respiratory function be monitored? Which orthopaedic complications are most common? What are key anaesthesia considerations? Where can I find scientific publications? How can I participate in research networks? How can I refer a patient to a specialist centre? Are there dedicated centres of expertise for LAMA2-RD?

Where can I find clinical care guidelines?

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