Are there dedicated centres of expertise for LAMA2-RD?

Several countries have neuromuscular expert centres with experience in LAMA2-RD. Availability varies by country. An updated list is available on our world map. If you are not sure where to start, contact us and we can help direct you.

Where can I find clinical care guidelines? Which assessments are recommended? What multidisciplinary care is required? How often should respiratory function be monitored? Which orthopaedic complications are most common? What are key anaesthesia considerations? Where can I find scientific publications? How can I participate in research networks? How can I refer a patient to a specialist centre?

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