What multidisciplinary care is required?

Optimal care requires a team including neurology, pulmonology, cardiology, orthopaedics, rehabilitation medicine, physiotherapy, occupational therapy, speech and language therapy, nutrition, genetics and psychosocial support. Coordination between specialists is best delivered through a dedicated neuromuscular centre.

Where can I find clinical care guidelines? Which assessments are recommended? How often should respiratory function be monitored? Which orthopaedic complications are most common? What are key anaesthesia considerations? Where can I find scientific publications? How can I participate in research networks? How can I refer a patient to a specialist centre? Are there dedicated centres of expertise for LAMA2-RD?

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