What financial support may be available?

Support varies by country and may include disability benefits, carer’s allowances, equipment funding, home adaptation grants and respite care (temporary relief care for caregivers). If you are not sure where to start, contact us and we can help direct you.

My child has just been diagnosed. What should we do next? What can we expect in the coming years? How do I explain the diagnosis to family and friends? How do I talk to siblings? How can I connect with other families? Which organizations can help us? How can parents avoid caregiver burnout? Where can I find reliable information? What questions should I ask my healthcare team?

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