Which organizations can help us?

National neuromuscular organizations, rare disease groups and LAMA2-specific organizations can provide information and community support. The international LAMA2 community at lama2.com brings together families, clinicians and researchers worldwide. If you are not sure where to start, contact us and we can help direct you.

My child has just been diagnosed. What should we do next? What can we expect in the coming years? How do I explain the diagnosis to family and friends? How do I talk to siblings? How can I connect with other families? What financial support may be available? How can parents avoid caregiver burnout? Where can I find reliable information? What questions should I ask my healthcare team?

The driving forces behind Lama2.com

Bekijk alle partners