How can I share my story?

Patient and family stories help other families feel less alone and raise awareness. If you would like to share yours, contact us and we can discuss how to do this in a way that feels right for you.

Which LAMA2 patient organizations exist worldwide? How can I connect with patients in my country? Are there online support groups? What is the LAMA2 Forum? Are there Facebook groups or social media communities? Are there family meetings or patient gatherings? Can I participate in conferences? Are conferences available online? How can I stay informed?

The driving forces behind Lama2.com

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