Are there family meetings or patient gatherings?

Yes, in some countries and internationally, in person, online or hybrid. We share news about upcoming events via this website and our LAMA2 newsletter.

Which LAMA2 patient organizations exist worldwide? How can I connect with patients in my country? Are there online support groups? What is the LAMA2 Forum? Are there Facebook groups or social media communities? How can I share my story? Can I participate in conferences? Are conferences available online? How can I stay informed?

The driving forces behind Lama2.com

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