How can I connect with patients in my country?

Contact your national neuromuscular organization, your local neuromuscular specialist centre, or contact us and we can help connect you with families and organizations in your country, or with the wider international community. We also encourage you to join the LAMA2 Forum to connect with the international LAMA2 community.

Which LAMA2 patient organizations exist worldwide? Are there online support groups? What is the LAMA2 Forum? Are there Facebook groups or social media communities? Are there family meetings or patient gatherings? How can I share my story? Can I participate in conferences? Are conferences available online? How can I stay informed?

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